Snowdome supports epigenetic BET inhibitors clinical trial

As today is International Clinical Trials Day (commemorating 20 May 1747, the day on which James Lind started his famous trial comparing treatments for scurvy), Snowdome is proud to share the following links to articles that appeared in the media today. The trial in the spotlight of all articles is supported by Snowdome funding. Consultant haematologists … Continued

recently approved research projects

Over the last 9 months, Snowdome’s funding efforts have been concentrated on directing just over $1,000,000 into epigenetic treatments for Australians with blood cancers. Snowdome has worked with several passionate donors to invest over $750,000 and has successfully secured $311,000 in matched funding through the Victorian Cancer Agency. A wonderful model of ‘government & philanthropy’ … Continued

A Researcher’s Insight – Azacitidine/Eltrombopag study

In a final analysis of the Peter Mac sponsored Azacitidine/Eltrombopag study, haematologist and research fellow, Dr Michael Dickinson, targets myelodysplastic syndromes and gives us a lay summary of the purpose of the trial.  Myelodysplastic syndromes are a group of conditions that lead to ineffective production of normal blood cells by the bone marrow. Patients present … Continued

A patient’s perspective …. Nicky’s story

My drive for supporting blood cancer started in November 1998, three weeks after my 27th birthday.  One evening at 8.30pm my obstetrician called and wanted to see me due to an abnormal blood test from earlier that day.  I was 15 weeks pregnant with our first child.  I had been living in Auckland for nearly … Continued

A daughter’s perspective …..

My dearest Mother Virginia: In September 2009, our dearest mother discovered two hot, red lumps on her leg and showed them to us. We took her to the local doctor thinking that it was nothing major. She had some blood tests and the family was urgently asked to attend an appointment at Cabrini to meet … Continued

the fault in her genes

September 18 approaches and it will be three years since my sister Andrea was diagnosed with Diffuse Large B cell lymphoma (stage 4). Andrea was 42 at the time, a partner, a mother of two boys, a daughter, sister, aunty, cousin and friend to many. This was not part of her story or ours but … Continued

A mother’s perspective…

“Prepare yourselves for the worst and hope for the best”. These words still echo from Dr Henry Eckhart, the Royal Children’s Hospital senior Haematologist and his team, Dr Keith Waters and Dr Karen Tiedemann as they presented two young and somewhat naïve parents with their son Benjamin’s diagnosis, Acute Myeloid Leukaemia (or the beast as … Continued

a patient’s perspective – annette’s story

Annette’s journey began with a tooth ache, then a blood test and following a visit to the Emergency department at The Alfred she learned she had Acute Myeloid Leukaemia (AML). Annette had never heard of AML but with the constant support from her husband and a positive attitude she battled through chemotherapy, experiencing the cruel … Continued